Becoming involved with your CF Center, local CF organizations, or connecting with other families affected by CF can help create a sense of confidence and community. Here are some ways to get connected:
Join the ACH CF Family Advisory Board:
The Cystic Fibrosis Family Advisory Board (FAB) was started in 2006 to involve families as part of the CF Team. The FAB has since played a vital role in CF care. We encourage our families to be part of the FAB to have a voice in the CF care provided at ACH. For more information or to apply to be a FAB member, please contact the CF Center at 501-364-1006. Here are some examples of things the FAB members are currently doing:
- FAB members serve on various CF work groups to give feedback on CF center issues, services, and policies from a family viewpoint
- FAB members are a resource and support network for parents of children with CF
- FAB members create a quarterly newsletter
- FAB members have a social media connection on Facebook
Attend the annual ACH CF Family Resource Day:
The annual CF Family Resource Day is an event held to provide families the chance to learn about new research, products or services available for CF Care, and a chance to network with each other. Brochures will be mailed each year with program information. The event is free is attend.
Sign up for the Arkansas Cystic Fibrosis Foundation notifications:
Join efforts in fundraising events, spreading CF awareness, and advocacy campaigns through the local CF Foundation chapter. Volunteers are welcome! https://www.cff.org/Get-Involved/